The Jeffrey Modell Canadian Immunodeficiency Network is a program of the Canadian Immunodeficiency Society (CI Society)
Mission
To serve as a highly respected healthcare resource across Canada that fosters early diagnosis of Primary Immune Deficiencies and ensures that PI patients have access to excellent care. This is accomplished through networking, knowledge dissemination and communication with healthcare professionals, patients and the general public.
The goal is to increase the diagnosed patient base.
Objectives
- Improve the health of Canadians who have PI.
- Promote PI awareness in healthcare professionals.
- Increase public awareness of PI.
- Be a meeting ground for the PI community.
- Provide leadership on PI health issues.
- Encourage broad community engagement.
- Align activities and programs, share best practices and synergize efforts.
In meeting our objectives, we welcome the participation of network sites and affiliates across Canada.
Membership
Each network site must be spearheaded by a physician working in immunology and:
- complete a yearly base line survey on Primary Immunodeficiency
- accept referrals and provide consultations on potential PI patients
- participate in PID Video Conferences (as per a self accredited event by the Royal College of Physicians guidelines)
- complete a profile with names of and contact information for team members
- make every effort to attend network sponsored conferences, seminars, events
- allow the site contact name and health care facility to be publicly recognized as a site
- endorse and support the Jeffrey Modell Canadian Immunodeficiency Network, a program of the CI Society
Failure to comply may result in a physician and health care facility losing Network site status.
Network affiliates must:
- accept referrals and provide consultations on potential PI patients
- complete a profile with names of and contact information for team members
- make every effort to attend network sponsored conferences, seminars, events
- allow the affiliate contact name and health care facility to be publicly recognized as a site
- endorse and support the Jeffrey Modell Canadian Immunodeficiency Network, a program of the CI Society
And affiliates may choose to:
- complete a yearly base line survey on Primary Immunodeficiency
- participate in PID Video Conferences by hosting a group or attend individually online through webcasting
Failure to comply may result in a physician and health care facility losing Network affiliate status.
Join our mailing list
Are you a physician who is interested in learning about immune deficiency? Is your practice in a remote area or do you require some assistance in managing your patient population? If you answered yes to any of these questions, access the Jeffrey Modell Canadian Immunodeficiency Network by emailing us at network@cisociety.com.
