Canadian Resources
- Canadian Immunodeficiency Society (CI Society) www.cisociety.com
- Canadian Immunodeficiences Patient Organization (CIPO) www.cipo.ca
International Resources
- Genetic Interest Group (Genetic Disorder Support) www.gig.org.uk
- Immune Deficiences Foundation New Zealand www.idfnz.org.nz
- Immune Deficiency Foundation USA www.primaryimmune.org
- International Patient Organization for Primary Immunodeficiencywww.ipopi.org
- Jeffrey Modell Foundation/NPI Resource Centre, USA www.Info4pi.org
- Michigan Immunodeficiency Foundation www.midf.org
- Finnish Patient Organization for PIDs www.immuunipuutospotilaidenyhdistys.fi
- Paul Ehrlich Institute www.pei.de
- The Binding Site Group www.PIDtesting.com
- The Centre for Immunodeficiency www.centreforimmunodeficiency.com
Condition-Specific Information
- Anthony Nolan Bone Marrow Trust www.anthonynolan.org.uk
- Bone Marrow Transplants www.bubblefoundation.org.uk
- Chronic Granulomatous Disorder www.cdg.org.uk
- HAE-Andy Long’s personal experience www.thirdbass.co.uk
- Severe Combined Immune Deficiency www.scid.net
- Bone Marrow Transplants www.bubblefoundation.org.uk
- XLP Research Trust www.xlpresearchtrust.org
Resources for Children
- Our Immune System written by Sara Le Bien, provided by the Immune Deficiency FoundationThis storybook educates children about primary immunodeficiency diseases through delightful, eye-catching illustrations. The characters explain how the immune system works and describe the treatments for pediatric patients. Children will understand their own bodies and be better prepared to deal with their own primary immunodeficiency.
- Immune System Poster provided by the Jeffrey Modell FoundationThis poster contains the following sections: “Your Body’s Defense”–A fun and informative illustration of how the immune system works; “What is Primary Immunodeficiency (PI)?”–An Important Health Message to Parents/Guardians, and Everyone; and an Activity Page with educational trivia and word games.
